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Has anyone experienced these symptoms with tietze syndrome?

Posted , 52 users are following.

Guest
Guest

I have experienced symptoms of this syndrome for sometime, but have only recently received a diagnosis.

As well as symptoms of pain in the chest, neck and arms I have also been experiencing an irregular heartbeat and abdominal discomfort.

Has anyone else experienced these symptoms?

3 likes, 84 replies

84 Replies

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  • Guest
    Guest

    Posted

    Hi there,

    sorry to hear that your suffering,i get the same symtoms as you and there really nasty,i also feel down when i get bouts of it,i just dont know what to do for the best,the docs dont seems to know much about it,they just say go to bed and take co codamol and they dont even touch the pain,i feel for you,how long have you been suffering from this?im into my 2nd year now,,do you ever get dizzy spells?.

    take it easy.

    regards

    Andy smile

    • UNCDOG
      UNCDOG Guest

      Posted

      I can get dizzy spells, but I can normally account for these by getting up too quickly. I did have one really bad bout though about 3 months ago. I stood up and my eyes went funny, and my heart felt as though it was beating really slowly. I went straight to bed, and luckily did not get up too quickly again, so didn't come back. Sometimes you feel great and forget yourself I guess, and it can come back when you get up quickly.
  • Guest
    Guest

    Posted

    Just come back from the docs with exactly the symptons you mention i.e. tightness of the chest, palpitations and light headedness. I have had Tietze now for 10 years and it comes and goes in severity. It is in a bad phase at the moment where even picking up a cup of tea is painful. I go to the docs merely to find out if they have found out more about it and if there are any better pain killers but not much is known about the condition and there doesn't seem to be very much new happening on the research side. Here's hoping it goes away soon.
  • Guest
    Guest

    Posted

    Hello kate,

    well ive only had this condition now for 2 years,is it the same as bornholms do you know,im getting frustrated cause the docs dont know much about it,,i feel very down and the pain just wont go away,i was so fit and active and i have a hard job and when i get bouts of this they think im making it up at work,,grrrrrrrrrrrr, anyway sorry to hear that you have had tietzes for ten years,,does it get any easier?it sounds like you get bad pain.

    wild1

  • her3kdz
    her3kdz

    Posted

    has anyone ever experinced a tingly feeling in the side of your face you this is happening??
    • tamaryn70438
      tamaryn70438 her3kdz

      Posted

      Yes I get it quite often especially my left side of my face and left bicep. Yet I can still smile and move my arm. 
    • TrishD
      TrishD her3kdz

      Posted

      Me too, all the time.  Also mostly in the left side.
  • Guest
    Guest

    Posted

    hello there her3kidz.,

    i personally havent had the tingling feeling in the side of my face but i get all sorts of different feeling,pains.

    i hope your not suffering to much,do you get any of the other pains?

    regards

    andy

    keep

  • her3kdz65
    her3kdz65

    Posted

    Andy,

    My experience with this started out with me thinking I was having heart problems. Seen heart doctor 2 times, did the whole stress test, pictures done. All normal. Nothing wrong with my heart. My doc finally told me this is what I have.

    It scared the heck out of me. this has been going on for about 3 years now. I can actually tell now when I am starting to have a flare up. my pain starts in the side of my breast, at least that's where it feels like it's at. I get lightheaded. Sometimes feel like I am going to pass out. My face feeling tingly doesn't always happen but it does quite a bit. My left arm starts to feel like I have been holding it up for days and I finally got to put it down. It gets a bit tingly and just feels like I have no strength at all in it. My heart also feels like it wants to beat out of my chest. This happens a lot that's why I went to the heart doctor. I feel like I have to take a real deep breath to slow it down from beating so fast. (I have taken my blood pressure after this happens to my heart and it is normal.) After I have one of these episodes when my arm starts to feel so tired and I have to breath cause my heart I get soooooo exhausted. I could just fall asleep.

    There have been nights when I am afraid to fall asleep cause I am always afraid that I might have an episode and not be able to breath to slow down my heart. Always think I am going to have a heart attack or something and not wake up.

    Has anyone else felt like this? the heart thing I mean?

    I am glad I have someone I can share this with who is has it as well and knows what I am talking about.

    Thanks

    her3kdz

    • anna09816
      anna09816 her3kdz65

      Posted

      Hi , I get the same feeling it feels likes heart is going to pop out my chest I checks pulse and it feels so irregular I get pain in my jaw and ear too mainly the left side I'm at the docs today as it has been quite bad the last couple of days I convinced myself it was my heart but after shopping with 3 kids I think I would of passed out by now lol x do you get pain in your neck and ear xx
    • sheila072482
      sheila072482 her3kdz65

      Posted

      I feel ur pain! I’m having the same exact sypmtoms as you! Done had every test possible! EKG stress test heart sonogram chest X-ray! Everything normal! But no one seems to know what it is! I suffer from panic attacks due to this because I’m always thing I’m going to have a heart attack! I just don’t know what to do! How do I even approach my doc with the possibility it can be this condition! I know this been years but if you have any advice please let me know! Thank you! And I hope your definitely feeling much better!
    • kim27383
      kim27383 sheila072482

      Posted

      My original doc said I have this after going to the ER with chest pain. I can push on my chest and it hurts. I even do it to make sure that's where the pain comes from. It hurts to touch my ribs too hard and I've also had panic attacks worrying about my heart. Been to the ER twice had a stress test, 3 EKGs, CT scan with contrast of my chest, and x-ray and nothing shows up. My current doctor doesn't think I have e this because there is no underlying cause. The pain is here and I do have ear issues and neck, clavicle and arm pain as well on both sides. Stress seems to make it worse. I've had it a couple months. Since then I notice every little pain possible and am constantly googling and on this site.

    • kassieinboise
      kassieinboise her3kdz65

      Posted

      You just described my experience to a T. Ironically, I’m reading this post because I’m afraid of falling asleep tonight for the exact reasons you’ve described.
    • tina2121
      tina2121 kassieinboise

      Posted

      I am going through this exact thing right now. Cant sleep cause my heart feels like its coming out of my chest.
  • Guest
    Guest

    Posted

    hello her4kidz,

    i get nasty pains in my left arm and my heart beats like crazy sometimes,i also get pains in my chest and when they come i think the worst,its a horrible thing,im now into my second year of this and it has got slighty easier after the inicial period of six months which were terrible,i was so sick so even when i get pain now i just grin and bear it,i find that its worse in winter for some reason and i get so tired so i can do is rest rest rest.

    regards

    Andy

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